About Me

In March 2009 I was diagnosed with cardiomyopathy - Heart Failure. Within two months, it progressed to end-stage. In August 2009 I had a Left Ventricular Assist Device (LVAD) implanted to help my heart pump blood. Then in December I was placed on the heart transplant list. On January 11, 2010 a heart became available for me and I was taken to the operating room. While on the table, the surgeons found that my own heart had began to heal. I didn't get that transplant and subsequently had my LVAD removed in September 2010. Today, I have a new appreciation for life and am learning to take each day one step at a time.

Thursday, November 7, 2019

Gratitude Brings us Happiness

Shortly after my heart recovered and I was able to have my heart pump removed, I began starting each day with the prayer, "Lord, thank you for healing my heart."  You've probably heard people say that if you aren't in the hospital, it's a good day.  We often don't think about the possibility that at any moment, chaos and grief can strike.  Our world can change in an instant.  But once we have come through something traumatic, like losing a loved one, a major illness, a divorce, or a major calamity like a fire or hurricane, we are acutely aware of just how blessed we are.  And so I started each day trying to keep at the forefront of my mind, just how blessed God had made me by healing my heart.  Psalm 92:2 says, "It is good to proclaim your unfailing love in the morning, and your faithfulness in the evening."

A few months ago, I lost my mom.  The grief has been so hard.  I have found the best antidote for sadness and grief has been to force myself to start realizing the many ways I have been blessed.  Because I have been missing her more the last few weeks, I have been making her favorite soups.  Each night as I am making them, I force myself to remember all the beautiful lessons I learned from her, and all the fun times we had sharing these soups together in a meal.  I have been blessed.  It is hard, but I am blessed.

Related imageMany of the people around me that I love dearly, are also grieving and struggling with issues.  It is easy to get overwhelmed and saddened.  But then I am reminded of how deeply God loves each of us: that is why we are so blessed.

There have been times when I have been asked why God allows such suffering in the world.  I have wrestled with this question too.  A few weeks ago, I found myself all alone in a hospital in NYC.  I have never felt so alone in my life.  And I was remembering all the pain and suffering my mom had experienced before her suffering, and I couldn't help but ask the Lord why he allowed it.  My mind kept coming back to God being our shepherd and watching over his flock.  How he cares so deeply for each one that he would leave his flock just to retrieve one lost sheep.  And then God turned my mind to the bummer sheep.  When a sheep is rejected by their mother or lame/injured, the shepherd has to gather them into his arms and nurse them back to health.  This one on one and very intimate time with shepherd is what helps the sheep learn to trust their master and to experience how much he truly loves and cares for them.  Then in the future when that sheep is returned to the flock, they always have that special connection to the shepherd.  I love this analogy.

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And then once again, I am reminded how blessed I truly am.  How have you been blessed today?

Tuesday, October 8, 2019

Grief and Heart Failure

It has been over 9 years since my LVAD was removed, and I still wake up each day with a whisper of thanks to God for healing my heart.  This daily whisper has been harder in the last few months after my sweet momma suffered from liver failure and a broken back and then eventually went home to her Savior.  My heart is broken and I have been grieving with everything in me.

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My mom spent a week in hospice and we tried to spend every possible minute with her, knowing her time on earth was coming to a close.  There was so much love and gratefulness in that room for a mother who took extraordinary measures to show her kids and grandkids how beloved they were.  Each of us knew how wide her love was for us, and we wanted her to know how much we would miss her.  It was excruciating.  After a few days of spending many, many hours at the hospital, I realized that my head was spinning and my legs felt like they weighed 150 pounds a piece.  My stomach became queasy and I knew if I didn't take some time to rest, I was going to end up in the hospital.  My heart was also having quite a time with bad rhythms from the stress.  I had to call the hubby to pick me up and take me home.  As we were leaving, I was truly angry with heart failure for stealing some of my last moments with the woman I treasured so much.  I was angry that my heart was so weak that I had to take time from her to deal with this illness.  I slept 24 hours straight and then was able to return to the hospital.

Now I know that my sisters and brothers were all struggling with the same tiredness that I was; however, it's hard when you're so upset to recognize that it would be a difficult situation even if I didn't have the heart failure.  But I was struck with how angry I was to have this illness.  And I felt shame for feeling that way.  I have been so grateful for these beautiful years with my family and I felt selfish being angry because I had to take a day to rest.  But I am certain that others with illnesses can relate to this anger.

A few months have passed since my mom went home to be with God and my heart seems a little stronger each day.  I've been able to force myself to be so thankful for the many years I had with her and the beautiful memories we made.  And I am extremely thankful that she was beside me through my diagnosis and entry into heart failure.  Certainly, life will never be the same.  Thinking of life going on without her is tough.  It may sound like I am a petulant child, but I feel like no one will love me the way she did and it makes me feel very lonely.  When I get overwhelmed with sadness though, I force myself to think of how wonderful she was and how many amazing moments we had together.

A friend told me a few weeks ago, that when you love someone with all your heart, you will always hurt when you think about them not being here with us.  But she compared it to a beautiful book.  You are moved as you are reading it and wish it would never end.  When the end comes, you will forever miss knowing how the story might have progressed, but your life is so much better having read it.  My mom had a beautiful faith and is certainly resting in our Savior's arms.  That brings my heart comfort.  Love you sweet momma!!

Wednesday, January 16, 2019

Nine Years

Nine years. NINE. I remember that day like it was yesterday. I started the day at the hospital, where I had been for 5 weeks trying to get my bleeding under control (blood thinners are tough). It was my last of 30 days to sit at the very top of the heart transplant list and I knew my wait would be months, if not years, if I didn't get a heart that day. I also remember thinking that it would be a great day to get a heart because my blood was already thickened to stop the bleeding. Sure enough the coordinators came in, and of course my family hadn't arrived yet.  They asked, "How'd you like to get a new heart today?" So many thoughts and so many emotions. I knew my best chance at survival was to get a new heart, but the thought of having mine cut out and someone else's sewn is was overwhelming. Not to mention the 1 in 3 chance I had of not making it up off the table. We had made a plan as to how to notify the family, but in the moment all plans went out the window.  My family began coming to the hospital to rejoice and pray with me. It was an absolutely crazy and perfect day.

They didn't take me to surgery until 8pm that night. 12 hours of mulling over the surgery. 12 hours to prepare for whatever the future held. 12 hours to find a peace that surpasses all understanding. And when they wheeled me down the hallway and I had to wave goodbye to the people I loved, I knew that no matter the outcome, God would provide for all of us. I cannot explain the peace I had except to say that I knew if I didn't make it, I was going to be with my Lord and He would comfort the ones I loved. God calmed all my fears and gave me a quiet reminder that He was there.

When I awoke, I knew I was on the wrong floor of the hospital (that's how long I had been there). I heard the nurse say, "It's a miracle." But I didn't understand (and I had a lot of drugs in my system). When my husband came in, he told me that they found my heart was functioning on its own and that I didn't need the transplant.  I was so astounded that I made him tell me again. Then I made my mom tell me and then my sister. I wanted to hear it over and over again.

That year had been so hard. After my open heart to have the LVAD implanted, I was amazed the human body could hurt so badly. Ray and I had such a difficult and life changing year. Many times throughout that difficult time, we felt a little forgotten by God. We cried out to Him with no response. We were clinging to his promises but desperately longed to feel his love. Then that fateful morning nine years ago, I felt like God took his great big arms and wrapped them around me. Ive never felt more loved and more in awe.

Early in my illness I read a book called, "How We Die." The author stated that many years ago there was true strength and chivalry in dying. Back then, most people that got sick stayed at home being taken care of by the people they loved and the doctors would come to them. They were strong and courageous for their families. Nowadays the majority of people die in a hospital surrounded by people they don't know or love and have lost the beauty of being strong during physical failings. I was determined to be the best I could be every single day no matter how difficult my illness got. Now that it has been nine years and two beautiful adopted boys later, I am still trying to make the most of each and every day and to remember that each of these days is a gift from above.