Like how I rhymed my post title?? ;-)
So it's been a very difficult day here at the hospital. Last night, Missy was feeling crappy when I got in from work; by 7pm she had a fever of about 101, then around 9pm it spiked to about 103. The pattern (yes, it's happened several times) has been chills bad enough to rattle the bed, then a high fever, then the fever breaks with bad sweating. Sounds fun, huh?
The docs ordered blood cultures last night, which take some time to show anything growing. Earlier today they grew a bacteria, but they're not sure what it is yet. Missy's been through a set of x-rays (to rule out pneumonia), another set of cultures, and she just got carted off to a CT scan of her abdomen.
We're both pretty frightened about what's happening, especially since the risk of infection is so high and the repercussions could be so horrible with the VAD. Please continue to pray for her body's healing and for the doctors as they treat this new issue.
On an upbeat note, happy birthday to Missy's brother, Tim! Sorry we couldn't celebrate with you.
About Me
In March 2009 I was diagnosed with cardiomyopathy - Heart Failure. Within two months, it progressed to end-stage. In August 2009 I had a Left Ventricular Assist Device (LVAD) implanted to help my heart pump blood. Then in December I was placed on the heart transplant list. On January 11, 2010 a heart became available for me and I was taken to the operating room. While on the table, the surgeons found that my own heart had began to heal. I didn't get that transplant and subsequently had my LVAD removed in September 2010. Today, I have a new appreciation for life and am learning to take each day one step at a time.
Tuesday, November 24, 2009
Saturday, November 21, 2009
God's Hands
Yesterday we got a visit from a colleague and his wife (Jim and Pam). They brought a very encouraging card from my co-workers, who have been so uplifting through this entire ordeal. The card was filled with reminders that they were still thinking and praying for Ray and I. I will never be able to express how grateful I am to be blessed with such remarkable people in my life.
Jim and Pam also brought a present (porcelain hands). They explained to me that they had given these hands to a man who had cancer, and he was healed. What a beautiful sentiment that they wanted to give God's healing to me as well. The card read, "Life is a gift from God. Day after Day, he showers us with His most precious stones: Beauty, Love, Abundance... Life!" Then there were stones to place into the hands. Thank you for such a thoughtful and powerful gift.
My blood thinness level was still really low today... meaning several more days in the hospital. But I am still determined to get out before Thanksgiving. :-) Today we will be spending the day watching the famous OSU vs Michigan game. I have never really been a football fan; however, my family is. So, I decided to give it a chance. I watched my first OSU game with my Mom this season and I will always cherish that time together with her.
Also, the doctor gave me fantastic news... I CAN GO SHOPPING ON BLACK FRIDAY!!!! Admittedly, I am one of those nuts that LOVES black Friday. The shopping, the deals, the people, the getting up at 3 am, the thrill of getting exactly what you wanted for half the price. It is one of my favorite days of the year. I was really bummed about missing it and had resigned myself to spending the day Internet shopping. However, as it turns out, my doctor was in favor of me going. YEAH!! Ray isn't all that excited about it because he worries so much for me, but I think he is beginning to come around. :-)
Isn't it awesome the way God sends us tiny blessings in the midst of our storms?!?!
Jim and Pam also brought a present (porcelain hands). They explained to me that they had given these hands to a man who had cancer, and he was healed. What a beautiful sentiment that they wanted to give God's healing to me as well. The card read, "Life is a gift from God. Day after Day, he showers us with His most precious stones: Beauty, Love, Abundance... Life!" Then there were stones to place into the hands. Thank you for such a thoughtful and powerful gift.
My blood thinness level was still really low today... meaning several more days in the hospital. But I am still determined to get out before Thanksgiving. :-) Today we will be spending the day watching the famous OSU vs Michigan game. I have never really been a football fan; however, my family is. So, I decided to give it a chance. I watched my first OSU game with my Mom this season and I will always cherish that time together with her.
Also, the doctor gave me fantastic news... I CAN GO SHOPPING ON BLACK FRIDAY!!!! Admittedly, I am one of those nuts that LOVES black Friday. The shopping, the deals, the people, the getting up at 3 am, the thrill of getting exactly what you wanted for half the price. It is one of my favorite days of the year. I was really bummed about missing it and had resigned myself to spending the day Internet shopping. However, as it turns out, my doctor was in favor of me going. YEAH!! Ray isn't all that excited about it because he worries so much for me, but I think he is beginning to come around. :-)
Isn't it awesome the way God sends us tiny blessings in the midst of our storms?!?!
Friday, November 20, 2009
Hospital Humor
Still in the hospital. The bleeding is fixed but now we are waiting on my INR (blood thinness level) to come back up. Will probably be here for several more days.
We have had some funny things happen to us this visit. When I was first admitted, my nurse put her stethoscope up to my heart and then yelled, "Oh crap" and ran out of the room. I was terrified at what was wrong. I asked her what she heard and she said, "Oh, I just realized I dated something wrong and went to fix it." Not so funny at the time, but funny now. :-)
We also try to walk a few miles a day. One mile is 13 laps around the hospital. On one of our daily laps, we saw an older gentlemen using the bedside commode with the curtain completely open. LOL!
Thank you to all the visitors that have come. Yesterday two of my old colleagues came to visit (thanks Jimmy D and Joe). They brought us some goodies that we really enjoyed last night. It is amazing how small acts of kindness really speak to our hearts. It reminded me how important it is for us to always be reaching out to others in need. God has really been giving us the opportunity to encourage our neighbors here in the hospital. On both sides of me, the men are undergoing difficult tests and their families are so worried. It is such a blessing to be able to encourage them and be reminded that everything in life has a purpose. God is so good.
We have had some funny things happen to us this visit. When I was first admitted, my nurse put her stethoscope up to my heart and then yelled, "Oh crap" and ran out of the room. I was terrified at what was wrong. I asked her what she heard and she said, "Oh, I just realized I dated something wrong and went to fix it." Not so funny at the time, but funny now. :-)
We also try to walk a few miles a day. One mile is 13 laps around the hospital. On one of our daily laps, we saw an older gentlemen using the bedside commode with the curtain completely open. LOL!
Thank you to all the visitors that have come. Yesterday two of my old colleagues came to visit (thanks Jimmy D and Joe). They brought us some goodies that we really enjoyed last night. It is amazing how small acts of kindness really speak to our hearts. It reminded me how important it is for us to always be reaching out to others in need. God has really been giving us the opportunity to encourage our neighbors here in the hospital. On both sides of me, the men are undergoing difficult tests and their families are so worried. It is such a blessing to be able to encourage them and be reminded that everything in life has a purpose. God is so good.
Wednesday, November 18, 2009
Surgery Went Well
Yesterday's DNC seems to have taken care of the bleeding issue. YEAH!! It was a quick surgery but I was out for about 17 hours from the anesthesia... which also made me throw up for about 4 hours. But today I am feeling really well. Praise God!
So, my doctors have started me back on blood thinners. I will have to stay in the hospital until my blood is at the right level, which could take up to a week. But another blessing... I should be home before Thanksgiving! :-)
Today I went to a support meeting here at the hospital for VAD and heart transplant patients and their families. It was really nice to get to meet other patients on the floor and to see that there is normal life after the transplant. God has given me so many blessings in the face of these trials.
Well, I'm starting to get bored here at the hospital because I'm feeling well again. So, I would love visitors or phone calls. My family and friends have been wonderful and I thank everyone for their thoughts and prayers.
So, my doctors have started me back on blood thinners. I will have to stay in the hospital until my blood is at the right level, which could take up to a week. But another blessing... I should be home before Thanksgiving! :-)
Today I went to a support meeting here at the hospital for VAD and heart transplant patients and their families. It was really nice to get to meet other patients on the floor and to see that there is normal life after the transplant. God has given me so many blessings in the face of these trials.
Well, I'm starting to get bored here at the hospital because I'm feeling well again. So, I would love visitors or phone calls. My family and friends have been wonderful and I thank everyone for their thoughts and prayers.
Monday, November 16, 2009
Tuesday: DNC Day (from Ray)
So after all the back and forth between cardio and GYN, Missy's set for a DNC tomorrow. She's an add-in, which means they'll get to her when they get to her. Which means no food and no drink until a while after the procedure. Which means a LONG day off waiting.
We're praying that this will take care of the bleeding issue. As I type, she's receiving her 11th unit of blood in 8 days, so something's gotta give. Sunday, one of the rounding docs dropped the hysterectomy bomb and that quickly got turned down by Missy's cardiologist today. If the DNC doesn't do the trick, they'll try an ablation, which is basically scarring the uterus.
We know that God has a purpose in all this, but we're struggling to see it right now. Please pray for Missy's procedure and that she doesn't have to go through anything else.
We're praying that this will take care of the bleeding issue. As I type, she's receiving her 11th unit of blood in 8 days, so something's gotta give. Sunday, one of the rounding docs dropped the hysterectomy bomb and that quickly got turned down by Missy's cardiologist today. If the DNC doesn't do the trick, they'll try an ablation, which is basically scarring the uterus.
We know that God has a purpose in all this, but we're struggling to see it right now. Please pray for Missy's procedure and that she doesn't have to go through anything else.
Friday, November 13, 2009
You Can Get In But You Can't Get Out
Day 5 in the hospital today, and I seem to be in the same condition I was when I came in. :-p As I am typing, I am receiving another 2 units of blood because my hemoglobin has dropped to 6.4 again. I am still taking the progesterone that gynecology prescribed to stop the bleeding...but have had very little luck getting it to stop. My doctor is back in town today and I am hoping to convince him to do SOMETHING to stop the bleeding. I believe he is still leaning towards a DNC. Not that I am excited about surgery, but it has to be better than a two week period. :-)
Admittedly my spirits are down a little today. Any extended time in the hospital is difficult. Ray and I often don't share how difficult this illness has been for both of us. Sometimes I think that is pride and sometimes it is just too painful to share. But it has taught us to reach out to those who are suffering and in need. It has become a daily prayer of mine to be used to reach others in need.
Admittedly my spirits are down a little today. Any extended time in the hospital is difficult. Ray and I often don't share how difficult this illness has been for both of us. Sometimes I think that is pride and sometimes it is just too painful to share. But it has taught us to reach out to those who are suffering and in need. It has become a daily prayer of mine to be used to reach others in need.
Wednesday, November 11, 2009
Blessings Abound
Even in the hospital, God provides blessings and encouragement. This morning I awoke to a care package put together by a nurse here at the hospital for me. In it was a card that read, "Trust in the Lord with all your heart; and lean not on your own understanding." Then she wrote, "I can't imagine what you're going through, but I know I serve a big God who can do Great Things!" How very true... and God has already done great things in my life.
Well, gynecology won the war on what to do to stop my bleeding and I began a progesterone regiment last night. My bleeding has already slowed considerably. However, my blood thickness level has dropped extremely low, which means it will be a long stay in the hospital while they have to bring that back up. But praise God that I am feeling so much better. In fact, Ray and I walked our mile this morning with no problem!
As we walk the halls of the hospital, I am reminded of all the people who are struggling to survive and the families' pain of watching a loved one suffer. God has given my heart a new found sympathy (and often empathy) for their lives. I have been praying that God will use me to brighten their days any way I can.
I am so excited today is Veteran's Day. Although I am thankful to all our vets and current military personnel, I am most excited that everyone is on holiday and coming to see me!! LOL! I can't tell you how much I love company when you're stuck in the hospital. :-) So a special thank you to those who have come to visit and to those who will be coming!!
Well, gynecology won the war on what to do to stop my bleeding and I began a progesterone regiment last night. My bleeding has already slowed considerably. However, my blood thickness level has dropped extremely low, which means it will be a long stay in the hospital while they have to bring that back up. But praise God that I am feeling so much better. In fact, Ray and I walked our mile this morning with no problem!
As we walk the halls of the hospital, I am reminded of all the people who are struggling to survive and the families' pain of watching a loved one suffer. God has given my heart a new found sympathy (and often empathy) for their lives. I have been praying that God will use me to brighten their days any way I can.
I am so excited today is Veteran's Day. Although I am thankful to all our vets and current military personnel, I am most excited that everyone is on holiday and coming to see me!! LOL! I can't tell you how much I love company when you're stuck in the hospital. :-) So a special thank you to those who have come to visit and to those who will be coming!!
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