About Me

In March 2009 I was diagnosed with cardiomyopathy - Heart Failure. Within two months, it progressed to end-stage. In August 2009 I had a Left Ventricular Assist Device (LVAD) implanted to help my heart pump blood. Then in December I was placed on the heart transplant list. On January 11, 2010 a heart became available for me and I was taken to the operating room. While on the table, the surgeons found that my own heart had began to heal. I didn't get that transplant and subsequently had my LVAD removed in September 2010. Today, I have a new appreciation for life and am learning to take each day one step at a time.

Monday, March 23, 2009

Initial Diagnosis

Every story has a beginning... At the end of January 2009, my husband and I decided to take a cruise to celebrate my new job opportunity. While we were on the cruise, I noticed I couldn’t catch my breath when we would climb the steps onboard the ship. Other than that, we had a wonderful cruise and I have beautiful memories of the time we had together.

When I returned, I started my new job. My new co-workers were fabulous and the atmosphere was wonderful. It was extremely challenging and I was striving so hard to rise to the occasion.
My husband also got a new job opportunity, for which we had been praying for quite some time. God is so good.

I got a head cold and some ick in my chest. I thought I got over it but was still feeling terrible. When Ray and I would walk at night, I started getting winded after just a few blocks. It got worse and worse until I couldn’t walk the few blocks into my office in the morning without stopping to catch my breath. Then a pain started in my chest, which was just unbearable when I would walk. I went to the doctor and she scheduled me for a chest xray, some blood work, and a stress test (on the off-chance it was my heart).

When I went for the stress test on Monday 3/9/09, the cardiologist came in and told me I was in heart failure. A whirlwind began that moment as they told us all the dos and don’ts and what to expect with heart failure.

In the beginning, I was sure God had a plan and reason for bringing this into our lives. I knew He was trying to get our attention and to draw us to Him. I knew He wanted to use this to work His work, even though it caused so much pain.

My family and friends were so encouraging and I loved the time I got to spend with everyone. I wish it wasn’t so hard on everyone, and I pray for strength for Ray, my Mom and Dad, my beautiful sisters, brother, and friends all the time.

We went back to the Heart Failure Clinic on Tuesday 3/17/09. They told me that heart failure was considered when your heart functions less than 40%... mine was at 15%. Best case scenario would be that my heart would get back up to 30%, which was still heart failure. She said that once hearts are damaged, it is next to impossible to get them truly healthy. Therefore, she thought certain I would need a pacemaker but was also very insistent about the need for a heart transplant.

I can't express to my family, friends, and co-workers how wonderful and encouraging they have been. I have felt surrounded in love and support from the very beginning. Thank you to each of you, you have made my heart stronger.

6 comments:

  1. Missy,
    Thank you so much for your thoughtfulness in starting this blog. I so long to communicate with you more but knowing it is difficult for you to talk on the phone and being so far away, that has not been possible. What a wonderful way not only to keep updated by you personally (not just others, although I do appreciate their updates), but it also gives me an avenue for communicating with you. I love you, sister. You are in our thoughts and prayers every day. I trust I will hear many testimonies of God's faithfulness in the days, weeks and months to come!!! I am working on a plan for when to bring the girls for a visit. I know it would have to be a short visit with all the girls. However, if I remember right, the last time we talked you expressed a desire to see them, and I know they would love to see you. Please let me know if it would be better not to bring them. I wish I could be there to massage and pamper you every day. Let me know if there's anything else we can do to help.
    I love you much,
    Lesley :-)

    ReplyDelete
  2. Hi Melissa,

    Thank you for sharing your story and your life. You are truly a blessing to so many people. I'm praying for your and your family. I'm praying for your healing. We know that by His stripes you are already healed.

    CONFESSION: God wants me well. Healing is the will of God. According to Philippians 2:13, God is at work in me right now to will and to do His good pleasure. Healing is at work in me.

    ReplyDelete
  3. Hey Missy! Thanks for sharing your story! I would love to come visit sometime. Just let me know when. I can't imagine how difficult it is to talk about, but I would love a quick call to let me know when it works for you. Hang in there! Love you! ~Mel

    ReplyDelete
  4. We love you Missy and Ray! Remember the song that Collegians sang "GOD WILL MAKE A WAY WHEN THERE SEEMS TO BE NO WAY, HE WORKS WE CAN NOT SEE, HE WILL MAKE A WAY."!!!!

    You remain in our thoughts and prayers!

    ReplyDelete
  5. Missy-

    Hang in there kiddo- you are an inspiration. Although I only met you once during my trip to find my family in Ohio, you made a great impression on me. My thoughts are with you and Aunt Sue.

    Mark Kaplan

    ReplyDelete
  6. You are in on my mind and in my prayers every day. You are a beautiful person and I love you!! If I could make this all go away for you I would. ~Janie

    ReplyDelete