About Me

In March 2009 I was diagnosed with cardiomyopathy - Heart Failure. Within two months, it progressed to end-stage. In August 2009 I had a Left Ventricular Assist Device (LVAD) implanted to help my heart pump blood. Then in December I was placed on the heart transplant list. On January 11, 2010 a heart became available for me and I was taken to the operating room. While on the table, the surgeons found that my own heart had began to heal. I didn't get that transplant and subsequently had my LVAD removed in September 2010. Today, I have a new appreciation for life and am learning to take each day one step at a time.

Monday, December 27, 2010

Ray's Words of Wisdom


We had a wonderful holiday with friends and family. Cannot tell you how precious every moment becomes when you are constantly grateful for each minute.


Last night I was telling Ray that I was getting pretty light-headed at odd times during the evening (the medicine I am on makes me very dizzy when I stand up and some times even close to passing out; therefore, I have to get up from sitting or laying very slowly). Ray, being the worry wort that he is, was very concerned and instructed me, "If you stand up and feel dizzy, sit back down." LOL! What does he think I am going to do, jumping jacks?!?! LOL!


These words are matched only by the words of one of my old surgeons who, when I asked what to do when I thought I was going to pass out, told me, "Get as close to the ground as possible." LOL!

Friday, December 24, 2010

Merry Christmas to All!

This Christmas, I could not be more thankful to be healthy (relatively) and to be spending it with many people that I love... (not in the hospital goes without saying!) I have learned so much about trials and pains these past few years, but I have come to realize that everything is just for a season. Good or bad, all things will change at some point. So, while you are in the season, enjoy what you can, learn what you can, and be patient, all things change.

Like so many others, I don't have the answers to my illness or our struggles, but I know one thing. I know whom I have believed in and am persuaded that He is able to keep that which He delivered unto Him until that day. Meaning if we know where our trust lies and are willing to follow at any cost, He will see us through to a better tomorrow.

My prayer for each of you is that you are able to slow down this holiday and learn from the season you are in. Merry Christmas to you!!

Tuesday, December 14, 2010

Your Heart Beats to its Own Rhythm


Do you ever sit and listen to your heart beat? (I'm not sure if you don't have heart disease if you can hear your heart beat?) But when I lay down to go to sleep at night, not only do I sit and listen to my heart, but I can see my chest rise and fall (maybe because my heart is enlarged). Some times this is very comforting; however, most of the time it will do a little flip flop or hard beat. It's like in the scary movies where the music is comforting and relaxing and then the bad guy jumps out.


It's funny how I have now had this illness for over a year and a half and I still get shaken by little reminders from my heart. Anyone else have a problem like that where it just seems to keep coming back at you. I feel like I have to deal with my fear over and over and over and over again.


Although it hasn't been a quick lesson for me, I am slowly learning to not panic when my heart flip flops. To not stay stiff and still for an hour after I feel my heart flutter. To not pass up opportunities to go out and live when I am afraid because my heart is beating hard. Seems like an elementary lesson, but it is so hard to overcome fear.


This season has been a really wonderful one for Ray and I. We have had so much fun shopping with friends, having dinner with loved ones, taking my nieces to the nutcracker, making cookies with my mom (ok, she made them and I watched), playing wii with my dad and cousin, and visiting with lots of wonderful people. And to top it all of, I DON'T HAVE TO PLUG INTO THE WALL ANYMORE!! That's right, I am machine free! What a great Christmas blessing!!! Peace and love to you during this season.

Friday, December 10, 2010

Tis the Season

Tis the season... for shopping, parties, dinners, baking, wrapping, etc., etc. It makes me tired just thinking about it. But I love it!! Although this year has been so much more exhausting than usual. I find myself tired after just a little effort. This has been discouraging, but I am so glad to be out of the hospital!

My kidneys have healed and I am back on all my heart meds. I do have a "wound vac," which is a little machine that is helping to heal my incision site. It's a little annoying because it gurgles quite loud quite often (and sounds like my stomach is growling) and it always seems to happen at the most quiet moments. LOL! I should get it off in a little over a week. Yeah!

This week I started volunteering at a local health facility that offers reduced health care for people without insurance. I only worked a 3 hour shift, but was completely exhausted. Perhaps I started a little too ambitiously, so I am going to only do 2 hour shifts for a while. I was surprised at how little I was able to do without great effort. But I am choosing to look at it as a challenge to work myself back up to being able to work again. But truthfully, I was tired by the time I got out of the shower in the morning. LOL!

Anyway, I started this post to tell you that although this time of the year is always hustling and bustling, take time to slow down and love the life you are living. Remember that even if you give a bad gift, cook a terrible hors d'oeuvres, your cookies burn, your wrapping looks like a two year old did it, or your house looks like a tornado blew through, it will not matter if you don't have the people you love to share your holidays with. Take time to just spend time with them and not stress the small stuff. Because at any time, any one of us could be in the hospital and none of that will matter. (You know I am saying all of this because I needed to hear it too! LOL!)

MERRY CHRISTMAS!